A look at what cataplexy really looks like in real life.
A collection of questions, comments and concerns from people with narcolepsy and their families.
I have a theory that the plot of Sleeping Beauty was based, in large part, on my son Dylan. Continue reading “No Rest for the UNwicked”
A consolidation of all the #WakeUpDylan narcolepsy videos created over the past few years, in one convenient location! Continue reading “#WakeUpDylan Video Collection”
As part of a narcolepsy presentation for Dylan’s class, I put together a whiteboarding video that provides a very basic and simple overview of narcolepsy and cataplexy specifically geared towards educating children about this complex neurological disorder. Ted E. Barrison is the main character in the video who, like Dylan, is a bear suffering from narcolepsy.
Read the full Patient Worthy article about Dylan here.
Read the full Snapd article about the 2nd Annual #WakeUpDylan Lemonade Stande here.
Read the full Globe and Mail article featuring Dylan’s story here.