Watching this made me sad! Almost mad me have an episode of my own! I have had NWC for 15 years…diagnosed at 45 … I know I am glad it is me, and that my children didn’t have to face what your son and I have to face. It is hard enough as an adult…I can’t imagine how hard this is for a Mother dal8ng with the constant fear of their child losing muscle control in all of the potentially dangerous kid activities they may be involved with! My heart and prayers go out to you and your precious son.
#WakeUpDylan 
Watching this made me sad! Almost mad me have an episode of my own! I have had NWC for 15 years…diagnosed at 45 … I know I am glad it is me, and that my children didn’t have to face what your son and I have to face. It is hard enough as an adult…I can’t imagine how hard this is for a Mother dal8ng with the constant fear of their child losing muscle control in all of the potentially dangerous kid activities they may be involved with! My heart and prayers go out to you and your precious son.
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