Skip to content

#WakeUpDylan

Narcolepsy + Cataplexy with a side of Insanity

Blog Posts
About #WakeUpDylan
Dylan’s Story
The Family Ursidae
What is Narcolepsy & Cataplexy?
Want to Help?
More

Month: April 2018

What Does the Narc Say? Vol. 2

More questions, comments and quotes from people with narcolepsy and their families. To view Volume 1, click here.

Share this:

Click to share on Twitter (Opens in new window)
Click to share on Facebook (Opens in new window)
Click to share on LinkedIn (Opens in new window)
Click to share on Google+ (Opens in new window)
Click to share on Pinterest (Opens in new window)

Like this:

Like Loading...

April 1, 2018April 1, 2018 by Lanna Barrison

Follow Us

Facebook
Instagram
Instagram

Instagram

Sadly, it looks like we won’t be getting much shine today so we’re officially moving the #WakeUpDylan Lemonade Stand indoors into the gym at Bakersfield P.S. located at 121 Mistysugar Trail. But being inside isn’t all bad because now we can provide patrons with exciting tours of the school to see Dylan’s classroom, the bed he sleeps on, his backpack hook, and the office where countless meetings about Dylan have taken place. Tours will occur every hour on the hour. #dontlettherainstopyou #itwillstillbegreat #hopetoseeyousoon #narcolepsyawareness

Today is THE day!! Hope to see everyone at the #WakeUpDylan Lemonade Stand today!! Rain or shine, we will be at Bakersfield Public School from 2pm to 4pm. Hoping to see you all there! #showtime #narcolepsyawareness

The #WakeUpDylan Lemonade Stand is TOMORROW!! Comment below with an emoji of your choice if you’ll be stopping by!

Early birthday party for Kirby D at the pool! If he looks sad about his cake, it’s because he was. He was very upset that Kirby would be cut up and eaten. He may have even shed a few tears over it but otherwise it was a very successful birthday party!! #thisisalmost7 #poolparty #kirbyeverything #thankyouscotts

1, 2, 3... BAKERSFIELD!! #soccertourney #won2games #bakersfieldproud

Every day, my heart aches for Dylan. It aches for his struggles, it aches for his sadness, and it aches for his frustrations. It aches because I cannot make him better and it aches because I so badly want to make him better. But one day a year, on the day of the Annual Lemonade Stand Fundraiser, things seem better. Hope replaces helplessness, joy replaces grief and my heartache temporarily subsides. The sheer bliss that comes from seeing the immense love and support that surrounds my baby boy is something even the deepest sorrow cannot corrode. Please show your love and support for Dylan (aka Kirby D) by joining us this Sunday, June 24th, rain or shine, at the 3rd Annual Lemonade Stand Fundraiser.

Follow Blog via Email

Enter your email address to follow this blog and receive notifications of new posts by email.

Follow #WakeUpDylan on WordPress.com

Blog Posts
About #WakeUpDylan
Dylan’s Story
The Family Ursidae
What is Narcolepsy & Cataplexy?
Want to Help?

Blog Categories

Arrested Development cataplexy Conferences Day in the Life Deep Thoughts Diagnosis Dylanisms Fundraising Just for Laughs Medicine & Treatment Parenting Raising Children with Narcolepsy Sleep Apnea Symptoms Truths Uncategorized Vacation Vaccines

Facebook

Facebook

Blog Post Archives

June 2018
May 2018
April 2018
January 2018
December 2017
November 2017
July 2017
June 2017
March 2017
February 2017
January 2017
October 2016
September 2016
February 2016
December 2015
November 2015
October 2015
September 2015
August 2015

Blog Posts
About #WakeUpDylan
Dylan’s Story
The Family Ursidae
What is Narcolepsy & Cataplexy?
Want to Help?

Blog at WordPress.com.

%d bloggers like this: